The Translational Genomics Research Institute (TGen) is an amazing organization focused on bringing bench research to the bedside. Making sure that lab work has a clinical application.
TGen’s Center for Rare Childhood Disorders is one way that they achieve this. Using state of the art genetic analysis TGen gives hope to families dealing with rare disorders: hope where there once was none.
D.A.M.E.S. was proud to participate at their annual family picnic. It was so lovely to extend the healing that D.A.M.E.S. has to offer to parents who might not otherwise have a tribe of their own.
If you are a family dealing with a rare childhood disease please contact this organization at https://www.tgen.org/contact-us/.