Does anyone else feel like a diagnosis of any kind should come with a lifetime supply of ink, paper, printer, and copier-because I do.
The only way I can keep my world sane with two children who have autism is to keep a binder for each of them and keep them updated.
What should go into your binder?
We created this tracker because you will usually have to put this information down on every form you fill out for every doctor your child sees. You might remember it all at first, but as they age, you’ll forget when they started to flip over or when they started crawling, walking, or holding a spoon. Fill this out, print it out, put it in the binder on the first page, and you’ll never have to pull these from memory again.
For my children, I have their DSMV evaluations. If you have a child with Down syndrome, you might want to put a copy of the genetic analysis here.
I usually keep the most current version of the IEP in the binder and file the others away to monitor their progress.
Put the contact information for your child’s IEP team on this sheet and keep it in the binder.
Remember that if you make any requests, always do so in writing.
Put the contact information for your child’s medical team here and keep it with you.
Keep copies of medical documents you may need to present for eligibility determinations, IEP meetings, and for any new providers. These could include important lab results or radiology reports, and evaluations from specialists.
Put the contact information for your child’s DDD team.
Ask your DDD coordinator about which reports and evaluations they will need sent to them and make sure you keep track of these. This is especially important when it is time to do your child’s eligibility redetermination at 6 and 18. For example, if your child is about to be 6 and should qualify for services with an intellectual disability diagnosis, you will be required to submit an official evaluation from a licensed school psychologist
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